Tyks unit for rare disease

A unit for rare diseases was founded by the hospital district on May 27, 2015.  The unit focuses on improving and coordinating the management of rare diseases.

Our goal is to guarantee every patient who has a rare disease the best possible treatment according to unified criteria.

We work in close national and international collaboration with patient organizations, units within health care and public administration, research projects and companies.

The responsible person for the unit is Dr. Johanna Lempainen, docent and specialist physician, and administratively we come under the Department of Paediatrics and Adolescent Medicine. Still, we coordinate the management of paediatric as well as of adult patients.

Our unit does not have an open care unit, since its role is to direct patients on the basis of referrals from the open care into the appropriate treatment path, where multiprofessional teams manage the treatment of these patients.  

The Unit for rare diseases acts as a coordinating unit and is not directly involved in the treatment of patients.